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Rare (orphan) diseases – is the disease most often genetic, occurring with a frequency of 1 case per 10,000 population. According to WHO, which is about 7% of the total population. This day has been coined by the European Organisation for Rare Diseases EURORDIS and timed to February 29, also a rare date that happens only once every four years. In non-leap years, this day is celebrated on February 28. In Russia, this day is celebrated since 2008, hold conferences and seminars to attract the attention of both the public and the government on this issue. In Russia, more than 2 million people have rare diseases. In Russia in 2011, runs the All-Russian Society of orphan diseases (VOOZ), and the community is sick individual diseases.

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